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9/8/2011 4:14:55 PM
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topic:
Middle School for Son with Autism
Lilchinita
Posts 2
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Hi Isa,
You were very helpful back in May with guilding me in the right direction concerning my sons Middle School options. Currently, I have been trying to obtain speech therapy at home with no success. He has Medicaid and I am desperately seeking a facility that accepts it. Being a full-time working mom, unfortunately, leaves me no option, on taking him to the centers for therapy after school.
Can you help? Are you familiar with any providers?
Thank you so much for your time.
Sincerely,
Mabel
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5/24/2011 5:02:32 PM
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topic:
Middle School for Son with Autism
Isa
Posts 9
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Mabel:
Please contact Jackie Acosta, Education and Support Specialist at Parent to Parent of Miami. She can help you sort out your concerns and will be able to provide you information regarding your school options. If this is the first time you are contacting our office, please let the reception know that I responded to your request for assistance by email. Have a great day.
Isabel C. Garcia
Executive Director of Parent to Parent of Miami
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5/19/2011 2:58:53 PM
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topic:
Middle School for Son with Autism
Lilchinita
Posts 2
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Does anybody have any suggestion on which Middle Schools have the best programs for autism?
My son is 11 and he transitioning from Elementary (Hialeah Gardens) to Middle School and i need some guidance.
His home school is Hialeah Middle, but i visited the school and im not to happy with their program.  I need help. Does anyone have any experience or has anyone heard any good comments about a certian Public Middle School in Miami or Hialeah?
TY
Mabel
edited by Lilchinita on 5/19/2011
edited by Lilchinita on 5/19/2011
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4/14/2011 3:00:28 AM
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topic:
HOMESCHOOLED CHILDREN WITH SPECIAL NEEDS
maritza12
Posts 1
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Hi...I have a 7 year old who I am homeschooling. I knew my son was different since he was about 2 years old. Since I am a teacher myself, I was able to see how his cognitive development was delayed. But somehow I was hoping to be wrong. I knew he was different but inside of me I wanted to believe it was not true. It is not easy to deal with this situation when it is your own child. I love my son but I am angry for his condition. For me, who have been devoted to education for so many years, it is difficult to accept my son will not learn to the same level as my other children. My son will have to deal with this situation all his life. He will have people make fun of him, and it will be difficult for him to get jobs. What will happen to him when I am no longer around? I decided to homeschool this year after he was given a report card graded according to the "normal" children standards and reflected all "F" grades. He was in first grade. It didn't matter he had an IEP and was receiving resources. He was graded as any other student which I thought was very unfair. The other students in his class did not want to play with him because he didn't know how to read or do math and he was always in trouble. He came to me one morning and said: "...mommy..my friends do not like me because I am always in red..." The teacher in his class controlled the students behavior with a color chart and my son was often in every other but the "good" color which was blue. Now I tell my son that all his days are BLUE DAYS. All his days are special and wonderful. Homeschooling has given me the opportunity to be with him more, spend more quality time and teach him at his own level. I bought a curriculum for him called LIFEPAC. It repeats lessons which is great for reinforcement. I also bought lots of MONTESSORI materials. I am focusing on hands on experiences more than the traditional way of teaching. I wish I met other parents whose children had similar needs so my son can have friends. I take him to the YMCA after school program so he can socialize but it will be great if he had friends who really understood him. Thank you for listening. It is 3am....the only time when its quiet and I can write  maybe a little scrambled....
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4/8/2011 9:41:09 AM
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topic:
Hello
letsenjoybeingyoung
Posts 2
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Good Morning,
Some doctors are pathology seeking meaning that they will be more focused on the problem and finding a label for it. There are benefits to this because it allows parents to have a way to make sense out of the behavior, but it places too much emphasis on what's "wrong." Not all doctors, but some. Also keep in mind that if your doctor's appointment is with a doctor whose discipline falls under hey the umbrella of psychology (i.e. psychiatrist, mental health therapist, psychologist) they may not be able to continue treating your child's behavior unless they can give the behavior a label also known as a diagnosis. Why? because that is how they get paid. This does not mean that they are not seeking the best interest of the child just letting you know what to expect.
On the other hand, if you were to look up Erik Erikson's 8 Stages of PsychosocialDevelopment, he would be able to explain to you that many behaviors we now see as out of control or disrespectful is totally normally according to the stages of child development. Understanding that even things that seem out of the ordinary is, in fact, ordinary may put you at ease.
Bottom Line: Some professionals approach will be pathology seeking, other professional will reassure you that certain behaviors, no matter how annoying and out of hand they may be, is completely normal.
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4/8/2011 9:18:32 AM
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topic:
Daycare for toddler with Autism
letsenjoybeingyoung
Posts 2
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Hi DawnMVS,
One option is to have him continue attending the school, but have a specialists in Autism come into his evironment periodically to enhance the areas where he is weak in. For example, if he was diagnosed on the spectrum because his motor skills and or fine motor skills has not reached the age-appropriate milestone, then have the specialist such as an occupational therapist come into the school or home to work with him. Likewise, if he is diagnosed on the higer functioning side of the spectrum such as aspergers, than have the specialist come into his environment to enhance his social cues. Or if his deficiency is in speech, then focus on speech therapy. Some specialist are are private specialist and costs as low as $15.00 per hour while others are agencies who allow specialist to spend the entire day at school with the child and accept certain insurances. The reason why keeping him at the same school would be beneficial is because being around non-autistic children will also enhance his level of functioning because he will start to familiarize himself with non-autistic behavior while still having his needs met by a specialist.
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3/30/2011 11:39:34 AM
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topic:
Daycare for toddler with Autism
DawnMVS
Posts 1
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Hi - Not sure how this works, this is my first time posting, but I was hoping someone could make some suggestions. I have a 2 1/5 year old son who was diagnosed on the spectrum in January. Since my husband and I both work during the day, he needs to be cared for during the day. Rather than having him attend just any daycare center that, most likely, will not benefit him and his special needs, we'd rather have him go somewhere that offers a classroom therapy environment instead. He is enrolled with Early Steps and through there he is currently attennding one of their partner facilities, but since this is very new to us, we just want to explore our options, if there are any. We have looked at a couple of other facilities, but they charge as much as $800 per week - definately not within our means. Any help is much appreciated. Thanks!
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3/16/2011 9:49:18 AM
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topic:
Hello
jjlo15
Posts 1
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Hi,
I'm not sure what to do here but my cousin recommended me this Parent to Parent thing....
I have a son and lately he's been saying these erradic things and has an attitude with me. I'm not sure what to do because spanking is not going to help neither is taking away things because he'll be over it quickly.
I haven't taken him to the doctor yet but I am scheduled next month to go.
I really would like some help.
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2/3/2011 12:40:24 PM
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topic:
Selective Mutism and multiple languages
sahmof3
Posts 1
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Hello, I am writing in desperate need of answers and/or advice. I am a very confused and worried mother of a 3 1/2 year old boy. He started talking at 2 1/2 almost 3. I speak to him in Spanish, my husband in Vietnamese and now he understands the languages and communicates very well with me of my husband. He is a very happy normal kid at home but when someone comes over or we go places he doesn't speak to no one including grandparents. He has shown to be afraid of many things such as loud noises or people in general. I have been taking him to a family day care and he will not speak to the 2 teachers and around kids just wispers and sometimes he will talk to the kids (in English). So he knows 3 languages and I think and believe that this has hurt him instead of benefiting him. The pediatrician says that we are doing the right thing teaching him 3 languages and I took him to a speech therapist and she heard him talking to me so she ruled out any speech problems but thinks he needs therapy twice a week to help with articulation, I took him once but he didn't talk. My dad gets so frustrated around him because he loves him so much but doesn't talk and doesn't look at him. His teachers continue to inform me of their concern and I don't know what to do. The pedi recommend I see a neurologist but appoinments in MCH are until March 16th. I read a lot about selective mutism but can't find what type of doctor would specialize int hat disorder. Any one has a selective mute kid? Who diagnosed him? he is suppose to start VPK this fall but I am afraid he will be kick out of school for not talking to teachers. I just want to cry He needs social anxiety help!
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1/5/2011 1:34:29 PM
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topic:
Autistic 3rd grader IEP
ahueso
Posts 3
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Hi lsaoud, my name is Alex and I am a Education and Support Specialist at Parent to Parent, have you contacted us at our offices and spoken to one of our Education and Support Specialist? We can speak to you directly and really take a look at all of the issues you are experiencing with the school and provide you with the necessary support. I will mention breifly that if you signed consent at your 11/29/10 IEP meeting to have your son re-evaluated the school has 60 "school calendar" days to not only complete the re-eval, but to sit with you and review the findings. If the school can not complete the evaluation within the 60 school callendar days, the must inform you in writting and reach an agreement with you on how much more time is reasonably needed. You should have also received with his report card a "status report"update which would inform you on his progress with his goals. This MUST be given to you with the report card, if you did not receive it please request it. Schools are finishing up the second school semester within the nest 2 weeks, so if your son is not progress well, I would highly suggest you request an interim IEP meeting ASAP to discuss his progress or lack there of. PUT IT IN WRITTING...All requests or any discussions you have with the school should be put in writting, either a letter or email and the SPED Chair and Assistant Principal is the persons in charge of ESE issues, so copy both. As I mentioned before you can contact us here at Parent to Parent and we can take a closer look at these issues and even review your son's IEP and provide suggestion to improve it. We also offer FREE workgroups and workshops specifically on IDEA, Special Education Process and IEP's...I highly recommend them! I hope this helps and please feel free to contact us anytime...we are always here to help! Have a great day!
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12/26/2010 12:43:16 PM
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topic:
My Chilld's IEP
Juan_Papidedos
Posts 1
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You might say the first principle of IDEA is to get an Advocate.
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12/14/2010 10:43:02 AM
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topic:
Autistic 3rd grader IEP
lsaoud
Posts 3
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My family and I just moved to Miami this past July due to a job transfer. I was told by my son's school before we moved that someone would meet with us over the summer, give us a tour of the school, etc. That never happened. My son did not even get to see the school (other than the outside of the building) until the first day of school. We did not get to have an IEP meeting with the school until Sept. 29th, which was outside of the time limit for a new IEP to be done. We agreed during the meeting that a new evaluation would be done for my son and then the IEP would be revisited and goals adjusted as needed. It is now December 14th, and the kids go on winter break at this end of this week. We have STILL not heard anything about my son's case. I have been asking him if anyone is pulling him out of class to work with him, etc. and he keeps saying no. When his first progress report came back, there was no accompanying report on how he was doing with his goals, which we were used to receiving with every report card at his old school and which I believe we are still supposed to get from the new school. My son is receiving some very poor grades which has never happened before. On another note, I had joined the PTA and signed up to be a volunteer through the dadeschools.net parent portal and have never received a notice either about PTA meetings or volunteering from the school. I would like to be as involved in my son's education as I can, and the situation is becoming extremely frustrating. The school is not being helpful at all and I need to know what to do next. Is there anyone who has experience with the dade county school system who is able to help us or make some recommendations? Since we are new to the area I still am not sure of how things work. I would really appreciate it!
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11/30/2010 10:38:52 AM
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topic:
Public School in NMB area for PDD
ahueso
Posts 3
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Hi TimerasMom,
My name is Alex and I am an Educational & Support Specialist at Parent to Parent, have you spoken to an ESS at our office? I know we can assist you with the issues you may be experiencing with the school. They are many things you need to consider with school selection and when going into the private sector you should keep in mind the limitations of IDEA-which is the federal law that ensures that our children receive access to an appropriate education. We can provide you with some school options, but we can not recommend one school over another. We can also help you with ensuring that your daughter is receiving the supports necessary to be successful in school and that the school is held accountable for providing these necessary supports. I hope we can help you with these concerns...Have a great day!
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11/12/2010 12:43:26 PM
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topic:
Public School in NMB area for PDD
TimerasMom
Posts 1
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My daughter is now attending a public school and is in third grade but we are going no where the school acts as if they do not have interest in what is best fr her. Before we take her out and put her in a private school I would love to know if anyone kows of a good public school or private school in the North Miami Beach area
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11/8/2010 3:58:54 PM
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topic:
Assistance needed
ahueso
Posts 3
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Andysoll2727,
Buenas, mi nombre es Alex y soy una especialista de educación y apoyo en Parent to Parent. Si necessitas mas ayauda o buscas otros recursos, puedes contactar nos a Parent to Parent y una de nuestras especialistas la pueden assistir, todas hablamos espanol! Que tengas un lindo dia!
Alex
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11/5/2010 9:35:54 AM
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topic:
Assistance needed
andysoll2727
Posts 1
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gracias . habia estado buscando este lugar don marino que me dijeron pero con poner eso en internet me daba cosas sobre la marina y hace 3 semanas q buscaba y ahora veo q tu post dice don marino center.. wow mil gracias ya llame y ahora ya me explicaron lo q debo hacer para poder hacer evaluar a mi hijo y q pueda recibir tratamiento me encanto la pagina lastima no hbalo ingles pero algo leyendo entiendo y me ayudo muchisimo.. mil gracias
miamirn wrote:
Hi,
It would cost about $2,000 to $3,000 to get a thorough evaluation by a good psychologist. University of Miami and Miami children's Hospital ( Dan Marino Center) do this type of testing. My grandson was tested by a private psychologist that works with the Dan Marino Center. She was excellent. If you have insurance, they may pay. If you need or on public assistance from the government, they pay may pay, also.
I hopes this helps,
If you have any other questions. I will be happy to help you.
miamirn
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9/30/2010 11:02:49 AM
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topic:
Does anyone know how to find an advocate?
Isa
Posts 9
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musicalmommy:
This is the executive director of Parent to Parent of Miami. I will follow up immediately. Please send your name and number to my personal email at igarcia@ptopmiami.org and I will follow up.
Have a great day! Isabel
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9/29/2010 12:51:36 PM
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topic:
Does anyone know how to find an advocate?
musicalmommy
Posts 1
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I've seen them in the IEP meetings I've attended as a teacher at my school once or twice but do not know how I go about finding one. My daughter is finishing up her private speech evaluation tomorrow and I would like to sit down with an advocate before going into any IEP meeting. I have no idea what she will qualify for or how to go about pushing for what I think is right for my child, who just turned 3 years old last week. She was in the Early Steps program here but I was told before her first meeting that she would not qualify for anything based on the Early Steps test results, hence the private evaluation. It was a hard enough to get them to push back the IEP meeting but thankfully they did. I cannot ask here at the school because I do not want to offend those that have helped me already to get this far. Any information will help...I've called the number on this website and left a message asking someone to contact me but have not heard anything as of yet.
Thanks for the help!
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9/7/2010 11:02:09 AM
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topic:
Looking for Family to Interview for Inclusive Park
lorena
Posts 1
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hello andrea, I have a kid with special needs, he walks, but he has motor problems, I would like to know were are the parks fpr special nees?thanks!!! Lorena
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8/12/2010 3:19:35 PM
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topic:
lots of ques.
jonnyguerrero
Posts 1
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yrodriguez wrote:
Hello Carlismom, Welcome. I hope we can help you connect with someone who can give you some personal perpective. Meanwhile, I have found the following links that may provide you with additional information. http://www.cerebralpalsyforum.net/ You can also post a question there. http://www.ucp.org/ucp_general.cfm/1/7 You can find your local UCP organization. Your daughter may also be eligible to receive therapies at school including an IEP(individual education plan) which is covered under a law know as The Individuals with Disabilities Education Act or (IDEA). http://www.cflparents.org/ This is a parent center that can also provide support and information. We have several parents that have children with Cerebral Palsy that have posted their comments here. I will try and make some connections for you. Stay strong. yrodriguez
Hello Carlismom
I just registered today and read your concerns I have a 5yr old son with CP I started him with botox on his legs and right arm but I felt that because of his muscle tone the botox was not helping or giving me the results I was hoping for but continue to give it on the right arm at 4yrs the orthopedics dr. decided to do surgery lengthening on both legs his hips are not dislocated but I am aware of any sudden changes in other words botox can help but it depends on her muscle tone but if she is going through pain you should consider any type of surgery that can help her relief her pain the procedure of the surgery will be guided by your dr hope this helps and the best to you and your daughter
jonnyguerrrero
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