- Recent Posts http://www.ptopmiami.org/forum/recent.aspx - Recent Posts en-us http://blogs.law.harvard.edu/tech/rss Jitbit AspNetForum Tue, 07 Sep 2010 11:02:09 GMT Tue, 07 Sep 2010 11:02:09 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=39 Message from lorena ]]> Tue, 07 Sep 2010 11:02:09 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=20 Message from jonnyguerrero yrodriguez wrote:
Hello Carlismom,

Welcome. I hope we can help you connect with someone who can give you some personal perpective. Meanwhile, I have found the following links that may provide you with additional information.

http://www.cerebralpalsyforum.net/ You can also post a question there.
http://www.ucp.org/ucp_general.cfm/1/7 You can find your local UCP organization.
Your daughter may also be eligible to receive therapies at school including an IEP(individual education plan) which is covered under a law know as The Individuals with Disabilities Education Act or (IDEA).
http://www.cflparents.org/ This is a parent center that can also provide support and information.

We have several parents that have children with Cerebral Palsy that have posted their comments here. I will try and make some connections for you.

Stay strong.
yrodriguez


Hello Carlismom
I just registered today and read your concerns I have a 5yr old son with CP I started him with botox on his legs and right arm but I felt that because of his muscle tone the botox was not helping or giving me the results I was hoping for but continue to give it on the right arm at 4yrs the orthopedics dr. decided to do surgery lengthening on both legs his hips are not dislocated but I am aware of any sudden changes in other words botox can help but it depends on her muscle tone but if she is going through pain you should consider any type of surgery that can help her relief her pain the procedure of the surgery will be guided by your dr hope this helps and the best to you and your daughter

jonnyguerrrero]]> Thu, 12 Aug 2010 15:19:35 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=40 Message from helenabeatriz
My name is Helena. I have a wondeful 2 year old (2 and 8months to be exact) who was diagnosed PDD-NOS mild a couple of months ago. We have been attending the Nova University Program - Starting Right on Mondays and Wednesdays and he has speech therapy on Tuesday/Thursday AM. I would like for him to go to a school/daycare/pre-school on Tuesdays and Thursdays hoping that it would help him with the speech and also socialize. Any suggestions? I am leaning to one close to my house Little College Club, but if there is any other place that anyone would recommend and where they will help I will drive to the other side of Miami.

Thanks in advance,

H]]> Tue, 27 Jul 2010 13:20:00 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=39 Message from aludtke412
Sincerely,

Andrea Ludtke
On-Air Production
WPBT2/PBS]]> Thu, 15 Jul 2010 22:26:59 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=33 Message from lsaoud Thu, 15 Jul 2010 10:17:09 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=38 Message from miamirn We had to tweak it this year. Jiovanni will be 8 yrs. old in Jully, already! He has high functioning Autism and is on grade level and above.This was his first year being homeschooled. What a great experience for both of us. CAMP: The year before last he went to the JCC. It was a very well rounded program and he had a "shadow" that year. (expensive, but worth it). Last year he went to the Victory School camp (inclusive and very affordable) He had fun, but he needed more outdoor activities. The parents seemed to be so busy. Unfortunetly, he didn't make any lasting friendships there. Finances are in between this year. They're too much for scholarships and not enough for the great theraputic programs available. So we're going to make our own camp this year. We're going on local mini-vacations. We're still in the process of making a list of the things we want to do. One thing is going to Butterfly Garden and then buying a butterfly habitat. Another will be Nickleodeon/and the waterparks in Orlando. We'll be going up with his best friend and his Mom. Reading a book a day will be on our list of activities. We have a great reading program. We used it this year. It's called Raz-Kids.com. It's a little work, but fun at the same time, because it's animated and you can record your own voice. He'll be writing a cartoon journal story book and putting it online. Jiovanni loves to draw and tell stories. He also likes to take pictures. So online photography will be a fun thing to do. There will be lots of Water Polo games and swimming meets to go to as swimming is Jiovanni's sport. He has homeschooling friends he'll be spending time with and I hope, in the course of our local travels, he'll make some new and lasting friendships. Thanks guys for letting me share ]]> Sat, 12 Jun 2010 10:13:33 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=38 Message from jkdt1955 Sat, 12 Jun 2010 08:45:27 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=38 Message from miamirn I sure would like to hear of your summer camp choices and any information you think would be helpful to others.

Thanks,

Elona/miamirn]]> Fri, 11 Jun 2010 19:09:51 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=16 Message from gln3k Thanks]]> Thu, 03 Jun 2010 10:35:21 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=6 Message from diana.garzon
Diana G]]> Wed, 05 May 2010 16:25:44 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=4 Message from gln3k
http://www.aspergerssociety.org/radio.htm]]> Sun, 18 Apr 2010 10:59:21 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=37 Message from lbustos
One option is to request a copy from your region of the Public schools available through McKay with and with out transportation depending on if you need it or not. These schools have space available you can see which are within reasonable distance from your home. You can contact them and request information about their programs. It can help you narrow down your search. Visit their website findout if they are an "A - B" school]]> Thu, 15 Apr 2010 17:19:48 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=35 Message from lbustos
Generally children are placed based on age and current grade, there are some exceptions due to special circumstances, but if you are just changing states it would not be an issue. Make sure you bring all there school and medical records with you (very important)]]> Thu, 15 Apr 2010 17:10:02 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=33 Message from lbustos for those who are planning to relocate to Miami Dade, looking for a good school is a struggle. This county currently has over 38,000 students in special eduaction programs. I suggest that you look at the programs carefully and meet the staff. Ask about services and supports for your child's disability and what training and certification do the teachers have? Children will fall through the cracks here as well if you are not constantly on top of things. Remember that children must attend there home school unless the IEP team decides other wise. You may want to look at the schools in region IV, visit miamidadeschools.net click on school information then click on schools then choose elementary, middle or high school the region appears at the end of the colum usually in roman numerals. Click on the school and it should take you to there website.
Coral Gables is a good area and most of the schools are good.
You can call Parent to Parent and speak to an Education and Support Specialist for additional support and information.]]> Thu, 15 Apr 2010 17:03:38 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=33 Message from Danka
We are planning to relocate in miami too this summer from Colorado. I have a son in fourth grade, he is a high-functional autistic. I am trying to find a good school too. Please let me know if you found any schools yet. I checked from greatschools.org and it shows that Coral Gables Elementary is 9 out of 10, but I am not sure if it is great for kids withh learning disablities.]]> Wed, 14 Apr 2010 17:51:08 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=37 Message from dianet976 Wed, 14 Apr 2010 16:31:46 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=36 Message from FloridaHomeschoolHelp If you are a Parent of a Teen, and would like to join me in creating a wonderful Graduation Memory for a SENIOR homeschooler in MDC. Please contact me: FloridaHomeschoolHelp@Yahoo.com
I am working with Miami Seaquarium and other Large Organizations in order to make this happen, however I can't do it alone.
Thanks ]]> Wed, 14 Apr 2010 10:40:05 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=31 Message from FloridaHomeschoolHelp MDC Honors College wants to work with ALL HOMESCHOOLERS IN S. Florida !!!! ( PLEASE READ )

My name is Grace C. Rodriguez Founder and President of Florida Homeschool Help Inc. I created this Company after Homeschooling my son (David) for 15 years. He Graduated in 2008 and is now attending MDC.
As a Veteran Homeschooling mom I understand the incredible need not only for support from one another, but also guidance, and good service. I work closely with every County in the State of Florida offering the following Services:
Evaluations (Hassle free to all Homeschool & Virtual School Students) Done by Email/Fax/Phone or in Person.
All done, by State & Nationally Certified Teachers - Signed and Sealed, ready to go.
• Report Cards
• Transcripts for Seniors
• Affidavits for College Entry
• College Advice and Preparation ( Cap Advisor for Homeschoolers 9th to 12 Grade )
• ( Working with Local Schools & Colleges for the HS Registration Process )
• All Forms & Information
• FREE SEMINARS / Workshops
• And Much More…

This Past week I had a Meeting with Doctor E. Carter Burrus Jr Director of the Honors College Miami Dade County. After our Meeting, is open to going and visiting with all Organizations and Speaking on behalf of MDC about what it takes to get into the Programs they offer. He is also open to doing an OPEN House for a College Tour. I thought this was something I needed to Share with ALL OF YOU as Parents and leaders of organizations. College is Important, and the more we know about our Options the better.
Miami Dade County College is becoming more Homeschool Friendly, and so far with my help they are understanding how the registration process works. I am in contact with the School Registrars office at the North Campus and soon other campus, to ensure that all homeschoolers get treated correctly, and that all paperwork is done & processed correctly and hassle free.
If you or anyone in your organization is INTERESTED in a FREE SEMINAR at your Location or at the N. Dade College - from Doctor. C Burrus Please call me today – I hold his Schedule for all Homeschooling Seminars.

Grace C. Rodriguez (305) 525.5525 or Email me: FloridaHomeschoolHelp@yahoo.com
It does NOT matter if you are in Dade or Broward, Palm Beach or Monroe – If your child is interested in this program, Dr. Burrus will be happy to OPEN the Doors for your family to view how it all works. ((Give me a Call today))
edited by FloridaHomeschoolHelp on 4/14/2010]]> Wed, 14 Apr 2010 10:35:24 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=26 Message from FloridaHomeschoolHelp My Son is now 19 and in College, He learned to read and write at the AGE of 10 but I never gave up on him. He personally took him out of school and Homeschooled him myself and with the help of tutors. He still struggles to write ( Spelling ) but he is a fine young man.
I would be HAPPY to help you and guide you in the right direction, I really went through a lot with my son and the Public School system so I DO know the LAW and what protects you!
Feel free to email me: FloridaHomeschoolHelp@yahoo.com I will be happy to help!
Grace
edited by FloridaHomeschoolHelp on 4/14/2010]]> Wed, 14 Apr 2010 10:16:52 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=4 Message from gln3k http://www.facebook.com/home.php?#!/aspergersawarenesspage?ref=ts

I will look for the book, If the link does not work I just put on the search Aspergers and they have a few pages open, I just went in the one with more people is call Asperger's Awareness Page, it is great,

Have a great day.]]> Mon, 12 Apr 2010 09:16:22 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=4 Message from miamirn Fri, 09 Apr 2010 15:26:06 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=4 Message from gln3k Again Thanks so much hope to keep hearing from you.]]> Fri, 09 Apr 2010 14:10:59 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=4 Message from miamirn I think that many people are really scared about disabilities. I guess, I've lived with my children and worked with so many disabled children that I've grown accustomed to seeing people as just people with differences. It reminds me of a story in my childhood. My Mom had a best friend. They were really close and my Mom's friends mother would come to visit us often. We all used to call her Mama so and so (for the sake of anonymity). Mama wasn't very pretty. Actually she was very plain. Truthfully, she was the ugliest woman I had ever seen. But she was a very kind and sweet lady. I would look at her sometimes and wonder how she got to be so homely. As the years passed we had many good times together. She would tell me stories and I grew close to her, like she was my own family. One day I looked at her and I saw that her face had changed, she no longer looked so ugly. I was a child and full of wonder. I thought, I remembered her as ugly and I knew she hadn't changed. She had the same ugly face, but it was no longer ugly to me. Her features looked beautiful to me. That was the first time I experienced what inner beauty was. It has happened to me many times since with people. Sometimes people look ugly, they act ugly, but when I get to know them they aren't ugly at all. They're really beautiful and different. So many people have experienced what I have. It's not uncommon. I just thought that I would relate this story to how people look at disabilities. At first appearance people with disabilities look ugly, may seem to act ugly, but really, truly they beautiful. Even the disability itself is beautiful. You have to just get by the outward appearance of it.
I know that if you look at your son and search for the right school, get him the right accommodations, and the right teachers, things will be ok. I can't say it will be easy, and nothing is perfect, but try to have confidence in yourself, I believe you will find your way and your son will find his way, too.
I have a beautiful children. A 26 yr old son who has Aspergers, a 31 yr old daughter, who is undiagnosed, a 7 year old grandson, who has PDD-NOS(Autism) (In his case he is Asperger's with a language component) who I'm homeschooling for the first time this year; and myself, well, I suspect that I am PDD-NOS or am close to it. I have traveled far in my journey with myself and my family. It's been sad and difficult and exciting and joyous. Sometimes all at the same time. I don't fret any more about disabilities, nor am I fearful of them anymore.
My grandson is in pre-team in swimming, he excels in his academics and he's learning about the world from different points of view. The latter is the hardest. He is doing great. Not that things aren't hard or sad or difficult, but he is a happy, fun and interesting kid. Any time you want to PM me please do. I can also give you some book recommendations and some stories about what worked and didn't work with my children and grandson, oh I forgot, and myself. Lol.
I hope that I have helped in some small way. Parent to Parent is a great forum. I just wish more people posted. I'm hoping it will grow in time. Thanks for sharing your thoughts. I do appreciate them.
Elona]]> Thu, 08 Apr 2010 12:46:09 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=4 Message from gln3k Help me Please...]]> Thu, 08 Apr 2010 11:54:37 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=17 Message from rcaveda marinemomkerry wrote:
we meet cutler ridge park sundays 3, drinks provided, special needs and regular kids
kerry 305 979 6307
park is wheelchair friendly
]]> Wed, 24 Mar 2010 08:31:02 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=35 Message from aljoje 1st child --- last year of High School
2nd child- Seventh Grade
3rd child- Nineth grade

Your advise will be appreciated.]]> Fri, 19 Mar 2010 08:08:47 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=2 Message from eli1212
I came cross this site, and boy am I glad, I have 7yr old son with cp, I'm a singel parent, I'm looking for a support group. I would like more information on our group. please contact me @
elisazuniga@comcast.net]]> Fri, 05 Mar 2010 18:10:01 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=17 Message from marinemomkerry kerry 305 979 6307
park is wheelchair friendly]]> Fri, 19 Feb 2010 09:32:11 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=2 Message from marinemomkerry i have to bring my 9 year old (he will be 10 monday) as he is wheelchair bound, blind and speech impaired, motor impaired, though he loves other kids and cognitively he is his age or close to it and laughs alot. he had a bone marrow transplant 10/08 for advanced x-ALD (went to U of Minnesota for that) but even with transplant declined. working towards some sort of recovery. we have home bound teacher from merrick who would provide nothing else. theres not much she is able to do with hiim but he adores her. i work with him everyday myself. he lost all his abilities between march and july 09. go to a couple places for therapies. none of the schools would take us, too many impairments, although with therapy, intensive, could recovery alot. best school ive ever seen, even has this rare disease there(some of the kids), is Oak Park elementary in sarasota. was going to gymboree for music but quit once they wouldnt allow me to sit in the gym part and do his stretching. can understand why but it still didnt work for us.
looking forward to meeting other parents of special needs kids
marinemomkerry@gmail.com]]> Sat, 13 Feb 2010 13:50:26 GMT http://www.ptopmiami.org/forum/messages.aspx?TopicID=34 Message from marinemomkerry marinemomkerry@gmail.com]]> Sat, 13 Feb 2010 13:44:11 GMT